I
know that I should be able to get this post done on time this year! Things have been happening to try to make
that not occur, but it is March 15 and pen is on the paper. Just a couple of weeks later than
expected. We are dealing with many
health issues in our house right now.
Some are being assessed and treated and others aren’t.
Anyway,
it is Autism Acceptance Day/Month. Are autistics accepted and allowed to be themselves
yet? The answer is still no.
What
will it take for autism to stop being vilified?
Why is it so wrong to have a different neurology than the majority of
people? We’d be so boring if the human
race all had the same type of brain and nothing would get done. With different brains, we have thinkers,
doers, creators, and more. Everyone,
including autistic people, has a part in the world’s functioning.
Our
different autistic brains make our bodies move in different ways. Some of us have more obvious differences in
our movements, while others don’t or they can mask them. My body and brain don’t always
cooperate. Many times, it is with larger
motor movements, like trying to copy what to do in my physiotherapy class. Other times, it is smaller muscle movements,
like in my face. My face does not show
the ‘appropriate’ facial expressions. It
gets me into trouble, because people think I’m mad or being mean based on my
face, instead of asking me what I am really feeling. Another example is having pictures
taken. I had the opportunity to have my
picture taken at an event and I chose not to, even though I wanted to. Partly because I didn’t want to interfere in
something my son was involved in and partly because I can’t make my face do a ‘picture
face’. It was disappointing, but I didn’t
see any point in wasting people’s time and then also having to explain the
problem. It is a problem that can be
gotten around but it can take a bit of work on another person’s part, which I
am not comfortable in asking them to do.
As
you can see there are challenges in being autistic but does that make autism a
bad thing in need of a cure?
Non-autistic people have challenges too.
Should they be cured of not being autistic or should they be allowed to
be themselves?
Accepting
autism means accepting the bad, the good, and the great parts of it. Autistic people are just as human as
non-autistic people and we deserve and are entitled to the same rights.
I
experienced my first taste of true acceptance this past year and I wrote about it
here, and here. It was a workshop designed to also be
safe for autistic people. I didn’t feel
judged for having someone else read what I wanted to say. I wasn’t ignored either. I was given my space and also helped as
needed. I felt like I belonged for the
first time ever.
Usually,
I am non-speaking in groups and in public.
If I can speak, I don’t know what to say or how to say it, so I come
across as anti-social. I’m not trying to
be rude when I sit there not talking, I actually can’t. If someone takes the time to talk one-on-one,
I can manage a bit, depending on topic.
Those people usually escape as soon as someone more able comes along for
them to talk to.
I
know I ramble and end up off topic when I write. So here is the main point. It is time to accept autistics as we are and
not try to change or erase us. This
means allowing us to stim, giving us means to communicate which work for us,
not punishing or making fun of our movement differences, asking instead of assuming
what our facial expressions and tone of voice mean, allowing us to be on our
own if we want, or helping us to interact if we need help. Let us participate in the world in the way we
were made to. Give us the accommodations/support
we ask for instead of trying to make us do things the way non-autistic people
do in the ‘real world’. We all live in
the same world together and each of us experiences the ‘real world’. We aren’t fictional characters and are
therefore just as real as the next person.
It
is time for autistic people to be fully accepted as is, not what someone else
wants us to be!
The video below is Twisted Sister's We're Not Gonna Take It (parent/child interaction in the beginning may be triggering for some).
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